Letters
Dear Patrick,

I am overwhelmed with so many feelings and I have just read your book. Of course I wanted to write you immediately…

I see your gentle kind face now as I write…. I hope this finds you well.

Lethal Souvenir has really touched me (having met it’s author of course, I am touched even deeper) and I imagine it has touched so many others in so many ways.

I am in awe of you, I admire your strength and your courage. I truly hope that writing this book has helped you

I thank you for reminding me of our strongest gift …. the gift of love . It’s that gift that keeps a broken heart from shattering…because there is still love to give … and to receive. As I read I was so reminded of my own relationship with my Dad (also taken by CJD) and I like to think that perhaps he and Charlene have met up in Heaven, and if so, I know he will take care of her, or from what I’ve learned of Charlene, perhaps she’ll take care of him ? My Dad was a Dad very similar to you J

And yes it has it has brought out my angry feelings also. How you have managed to turn yours into a healthy anger I also find remarkable and greatly respect you for that.

I’ll share with you that this past Fall 2007 I had a very moving experience…one I will never forget….and that keeps me dedicated to those affected by CJD.

While in Scotland to attend the NeuroPrion International Conference ( with Florence, and reps from our CJD family support groups all over the world) I visited my dear friend Don Simms, his amazing wife and children …and of course met Johnny Simms. My heart changed once again.

I hope I haven’t babbled on too much …but I thought the best way to say thank you is to share how Lethal Souvenir has made me feel

I saw you last on May 10th 2005, and I still feel the honor of having you and Sharon with us on that special day .

A very special day indeed.
Fondly,

Tracie Kedzierski
Mr. Singh,

I read about your book on the CJD Voice forum. I lost my mother to sporadic CJD on August 28, 2007. Nobody knows what it is like to face something this horrible disease unless they have been through it themselves. I hope you have found healing and peace in the writing of your book. I look forward to reading it, though I know that it is going to cause me a great deal of pain as I relive my mother's illness. I hope that you will be a light to other people who have no idea that something like this can happen.

Peace and blessings to you,
Nikki
Thank you Loraine for sharing this information. I will be sure to purchase a copy of the book. I am sure it was a very difficult task for Patrick, but with the support of his family he has accomplished the publication of such an important book - a book not only to him and the family, but also to all the families out there who have had to endure the death of a family member to such an awful disease. My heart goes out to you and your family. Charlene was a very beautiful young woman, and I am sure that all the sacrifices that your brother has made in publishing this book will not be in vain. Charlene memory will live on.

God bless.
Elaine M. Hing
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